Thank you for helping me reach my Walk to Defeat ALS fundraising goal! The Walk to Defeat ALS raises funds to support those affected by ALS, like my dad who we lost in January to this disease, and to spread awareness of the urgency to find treatments and a cure.
Amyotrophic lateral sclerosis (ALS) is a progressive, fatal neuromuscular disease that slowly robs the body of its ability to walk, speak, swallow and breathe. The life expectancy of a person with ALS averages 2 to 5 years from the time of diagnosis. ALS can strike anyone, and presently there is no known cause or cure.
That's why I'm walking. To change the statistics. To bring help and hope to those living with the disease. To ensure that no one ever hears the words: You Have ALS again.
The past two years have brought incredible advancements in ALS research, expanded access to care for people living with ALS, and enabled legislation that impacts the quality of life of people with ALS and their families.
But, we can't stop now. The key to a cure begins with you.
My dad was diagnosed with ALS in May of 2020 but had been living with ALS unknowingly for a couple years. My dad was such a talkative, funny person and during his last few months he couldn't do what we loved the most about him- his ability to talk, tell us stories or just joke around with us. I will miss hearing his voice and his jokes the most.
We lost my dad on January 22 to this disease and he is greatly missed. Please consider a donation on his behalf. With your help, we will be able to make a difference in the lives of people affected by this disease.