ALS Ice Bucket Challenge Progress

 

ALS Relief Fund

 

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ALS Emergency Relief Fund

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We must take a stand against the imminent threat of COVID-19 to our ALS community.

When a common cold is a detriment to the health and safety of a person with ALS, a virus like COVID-19 puts our entire community at risk. We made a promise to the thousands of people impacted by ALS in Colorado, Utah and Wyoming. We must rise to keep them safe and maintain a sense of hope in this time of crisis.

How Can You Help?

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In the best of times, we lean heavily on the support of our community to provide critical programs and services to people living with ALS covering all 116 counties throughout Colorado, Wyoming and Utah.  We are in urgent need of an additional commitment from our community so that we can continue to be here for those with ALS now, and when this crisis ends.

 Please consider making a contribution to support our emergency relief efforts and provide unparalleled care and support for those we serve. We are all facing new fears and uncertainties, but for those living with ALS, COVID-19 is simply too great of a threat to bear.

Read on to learn how your contribution, no matter how big or small, will make all the difference in helping us support the ALS community in these unprecedented times.

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Want to stay up-to-date on programs, events, and information that meet the needs of our ALS community? Read the latest issue of the Care Services Newsletter and our CareService Programs- COVID-19 designed specifically for people living with ALS and their caregivers.

 

ALS Relief Fund

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As a Chapter, we are collaborating and adapting to weather this crisis, together.

It is not business as usual, and our regular programs and services are no longer enough to help ALS families through this difficult and scary time.

Scroll to learn more about our targeted relief efforts to protect our community, adapt our programs, and meet the unique needs of people living with ALS and their families during the COVID-19 crisis.

 

 

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Supporting Families to Prepare for the Unexpected

 

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 Care services staff continue to offer care consultations, home visits and education through virtual technology maintaining our connection and support for each and every family across Colorado, Utah and Wyoming.

 Covid-19 has created the need to build toolkits for our families to address the new health scenarios that may arise in order to prepare our families for unforeseen needs.

Our team has developed resources and support to address isolation, safety, caregiver fatigue and family connection.

 

 

 

 

 

Preventing Isolation Through Support Groups

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Support Group Meetings connect our community to their peers and to us—these meetings help to galvanize the ALS community, while offering vital information, support and resources to those navigating life with ALS.

Moving towards virtual support groups to protect the safety of those we serve was a logical step to ensure our community continues to receive this vital service.

We are working toward increasing the number of meetings held monthly in an effort to ensure the ALS community receives additional support to carry them through the COVID-19 crisis.

 

 

 

 

      

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 ALS Walk website

 

 

Keeping Lines of Communication Open for the ALS Community 

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Many people living with ALS will experience difficulty with speech at some point in their journey. If COVID-19 strikes and invasive ventilation is required to sustain life, those patients will require the support of an augmentative speech communication device in order to maintain communication with the world around them.

Ensuring that people with ALS have access to the right communication equipment and accessibility tools makes it possible for them remain connected to their families, friends, and physicians.

Over the past year, the Chapter has loaned out many pieces of communication devices, while working closely with the patient's Speech Language Pathologists to find the right fit. With COVID-19 upon us, we anticipate the need for additional communication devices and support will be greater in the coming months.

 


Maintaining our Team Approach with Mulitidicipliary Clinics

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As the healthcare industry has moved to TeleHealth to keep connected and address the changing needs related to the progression of ALS, The ALS Association has moved with them to continue to work closely and meet the needs of our families. Our Care Coordinators keep in regular contact with the clinic teams to follow up on questions and needed support for each clinic patient.

 

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FAQs & Contact Us  

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 Want to stay up-to-date on programs, events, and information that meets the needs of our ALS community? Follow us on social media:

Facebook: @RockyMtnALSA
Twitter: @ALSA_RockyMtn
Instagram: @ALSA_RockyMtn

 The ALS Association has compiled a list of Frequently Asked Questions about living with ALS and the potential risks of contracting COVID-19. Click here to read responses from our professional medical and care services team. 

 Our team has mobilized and is working remotely to ensure all of our programs continue to serve the ALS community in this time of crisis. To contact any staff member, please call the office at (303) 832-2322. 

Pam Rush-Negri, CEO, Pam@alsaco.org
Suzanne Schrag, Care Service Director, Suzanne@alsaco.org
Dawn Nokomis,  Development Director, Dawn@alsaco.org
Janet Kawamura, Office Manager, Janet@alsaco.org